Last week we scheduled surgery for Faith. We’ve shared details with close family and friends but otherwise, I just wasn’t ready to put it out there yet. Needed time to process. Granted I don’t think there’s ever enough time to process this type of thing. But it’s happening. April 16th. We were waiting to schedule until we knew what this current flare was doing. As things happen for her, she went from ok to bad to worse in a matter of days. So she was started back on prednisone.
With that, her Dr. said that surgery needed to be sooner rather than later. If she’s on prednisone for too long, then she won’t heal from surgery. So.. next week it is. The surgery is to help her insides heal and for her to grow. If everything goes ok, this will be a temporary thing and they’ll put everything back together in a year or so. We appreciate your thoughts, prayers and concern.
We’ve tried healing with food, we’ve tried healing through meds and are out of options. When you’re only 40-50 lbs to begin with, she can’t stand to lose any weight and that’s what will happen if she doesn’t get the surgery. So giving it more time and trying to heal with foods or whatever is just not an option for her. Yes, surgery is scary… we’ve been talking with drs, surgeons, getting 2nd and 3rd opinions, etc. and everyone has said that this is what is best for her.
Currently, Faith is doing better on the prednisone and is back to ‘normal’ activity. We all had a nice Easter. Both Tim and I were supposed to be going on trips this weekend. Tim to CO for his birthday present – opening day of Baseball with our friend Scott, and me to LA for a press trip. We have been taking it day by day to see if Faith would improve. She has improved but maybe not enough for us both to be out of town. So we’ll give it another day but Tim decided that if we both couldn’t go, he’d be the one to stay home. He said that his trip could be rescheduled but mine couldn’t. He’s amazing!!!
I joined Tim for lunch today and we took a walk. It was nice to just escape for just a little bit. He always makes me feel better. I’ve been stressed, can’t sleep.. just so much going on and to keep my mind from calming.
Faith is not happy about the surgery but I think she’s accepted it and is at least on her way to understanding that this is going to help her heal and get a break from this horrible disease.
So that’s where we are as of now.
Again, thank you for all your thoughts and prayers. We still pray for complete healing. Otherwise, we pray for peace, wisdom for the doctor/surgeon and a little less stress and anxiety would be great!